| We are not all the same

Within the ACCN there are a range of groups: some for specific cancers, others generic, and with varying kinds of consumer governance, representation and independence. Some offer information, some support, some advocacy through the consumer view, some promote awareness and some do all these things. We decided to be as inclusive as possible, while asking entrants to note these differences.

Groups range from fully independent 100% volunteer cancer consumer groups with no government or industry funding and whose key purpose is advocacy for people affected by cancer. Some other independent groups have more traditional corporate structures and may receive government funding for projects and actively raise their own funds.

Other models are found in the charitable cancer organisations, foundations and some research institutes which have set up Consumer Advisory Groups for advice on their own information, support, research and advocacy. Sources of funding may also be useful to know: is the consumer group or parent organisation supported by community donors, by government or industry funding and to what extent.